Entries by Neil

2nd World Sepsis Congress

On September 5th and 6th, the Global Sepsis Alliance, initiator of World Sepsis Day and World Sepsis Congress, will host the 2nd World Sepsis Congress. The 2nd WSC is a free online congress in which over 100 renowned experts from all around the world will give presentations on all aspects of sepsis. The congress will […]

Sophie’s New Braces

Finally have braces 😊 Look more like Lucy now more than ever and I love it 💖 My amazing twin and she will never be forgotten it’s 2 months ago today I lost my beautiful twin and I can’t believe it’s been that long. I never thought I would last a week without my twin […]

Corrie – Hard post but necessary – Sepsis

With the story line tonight that is currently on Corrie we appreciate and humbled by all the thoughts, prayers and well wishes.   As you can imagine it was very hard for us to know it was being aired tonight and tbh can not watch it yet. We are thankful that sepsis awareness is being spread […]

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Cousin Oly

Today has been a mixed up day. Getting up early for work semi normality spending time with friends to finally being with Sophie, Cath and Neil. Rollercoaster of emotions. As every day ticks by, Lucy is in our thoughts and talking about the memories (many tears) and constantly trying to #DOITFORLUCY and just “be” and […]

Ed Sheeran – Special

Just a quick update on Sophie’s experience last Saturday. 🙂 Smiling Sophie makes us all smile. Lovely special guy. She met Ed’s agent at 6:40 at gate 4 and was taken up to his dressing room. She still had no idea what was happening. I told her to read her badge and she thought it […]

Sophies first blog – Twin Twong

After my twin sister passed away I’ve realise Sepsis is a very big thing and there needs to be something to stop people passing away with it and after losing Lucy in the space of hours I’ve also realised spending time with people I love is everything and anyone can be taken away from you […]

Ed Sheeran tonight – An excited Sophie

James’s friend Diffa gave Sophie his Ed Sheeran tickets for tonight’s performance. Thank you so much Diffa for making our little girly smile.   She is soo soooo excited to go and today had her nails done, brows done, fake tanned and new outfit. Got to look good for Ed 😉 Fingers cross Ed’s team […]

Todays been a strange day

Whilst the story is going natioanly viral not one of them (national media) pointed to the website to donate.. 🙁 sad. Media gone wrong, they got their story yet haven’t given anything back …. ECMO: We are planning a trip to the manufacturer in Swansea very soon to find out all the details on not […]

Media today – gone viral Nationally

Today was a very busy day in the National media, only one of which (Local Link) asked us for any comments or review. Funny enough that was the only one that included our website link 🙁 http://www.dailymail.co.uk/health/article-5865389/Twins-heartbreak-identical-sister-16-dies-sepsis.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490 https://themanpost.com/twins-heartbreak-as-identical-sister-16-dies-from-sepsis/ https://www.dailystar.co.uk/news/latest-news/711150/Lucy-Ellis-gymnast-flu-Wales-sepsis-death https://www.thesun.co.uk/news/6586459/lucy-ellis-newport-gymnast-died-sepsis/ http://www.southwalesargus.co.uk/news/16301853.the-family-of-newport-gymnast-lucy-ellis-have-also-called-for-specialist-equipment-to-be-made-available-in-wales-after-her-death-from-sepsis/ https://www.mirror.co.uk/news/uk-news/beautiful-gymnast-16-dies-just-12752167 https://www.walesonline.co.uk/news/health/heartbroken-dad-who-lost-teen-14799498 https://www.locallinkmagazine.com/lucy-ellis-story/ We have postponed BBC and ITV interviews until next week as […]