Watch this space as we have an influx of calls, social posts and emails from the media today. BBC, ITV and Capital Radio to name a few.

It’s a struggle to even talk about it let alone provide media statements…

Coming tomorrow… South Wales Argus article…

Thanks you everyone for your support.

Neil, Cath and Sophie.

X

https://www.walesonline.co.uk/news/health/heartbroken-dad-who-lost-teen-14799498

A heartbroken dad who lost his 16-year-old daughter to sepsis says it is “scandalous” that specialist machines to treat the condition are not available in Wales.

Lucy Ellis, a gifted gymnast with an identical twin sister called Sophie, died on Tuesday, May 15, after her health deteriorated rapidly.

The schoolgirl initially complained of flu-like symptoms and breathing difficulties, and visited her GP who immediately referred her to the Royal Gwent Hospital in Newport.

When she arrived she was given multiple antibiotics, blood tests, X-rays and a CT scan which showed fluid around her heart.

Doctors diagnosed the teenager with sepsis – a condition triggered by an infection or injury that causes the body to attack tissues and organs – and warned the family that she was gravely unwell.

In a last-ditch attempt to save her, a team from the Royal Brompton Hospital in London were called in via helicopter with a specialist piece of equipment to filter her blood – but it was too late.
Lucy Ellis, from Bassaleg, Newport, died of sepsis at the age of 16

Her father Neil Ellis has now set up the Lucy Ellis Foundation which aims to ensure hospitals in Wales have access to a specialist blood machine called an ECMO.

The foundation also wants to raise awareness of the danger signs and symptoms leading up to the onset of sepsis which can claim patients’ lives within hours.

“Lucy was a special girl that has touched many people’s lives in the short time of her life,” said Neil.

“She was the most athletic person I knew, and seeing her progress was amazing.

“I’ll never forget a conversation we at an international gymnastics competition in Turin last year.

“She said she wanted to leave this life knowing she had made a difference. Little did she and the family know this difference would be in her death.”

Lucy, who had dreams of becoming a doctor, was described by her teachers in Bassaleg School as an “absolute credit” to the school who flourished in acrobatic gymnastics in particular.
Lucy was a talented gymnast

A statement from the school read: “She was a young woman who was everything you could hope for in a student. It’s a privilege for us to have played a part in her life and we are forever changed for the better for having known her.”
Read More

Father who lost both legs and an arm to sepsis describes his fight to walk again

Neil, from Bassaleg, Newport, said it was “unbelievable” that no hospital in Wales had access to an ECMO machine.

He said it took two hours to fly the machine and specialists to the Royal Gwent, by which time Lucy was receiving CPR.

He added: “Believe it or not this machine is manufactured in Swansea, but there isn’t a single hospital in Wales that has one at hand or has a team to make this treatment possible.”

According to latest figures, recorded cases of sepsis are on the rise in Wales.

In 2016-17, hospitals recorded a combined 12,589 sepsis cases compared to 11,457 in 2014-15 – an increase of 10%.

But the Welsh Government says death rates from the condition are deteriorating due to an increase in awareness from medical staff.

Sepsis research is currently being undertaken at three of the Health and Care Research Wales’ centre and units.

A Welsh Government spokesman said: “Wales’ efforts to improve the prevention, diagnosis and early treatment of sepsis have received international recognition.

“We were the first country in the world to implement a system to ensure early escalation of patients seen to be deteriorating and recent figures suggest the mortality figures associated with sepsis have decreased.

“Welsh patients receive ECMO treatment at Glenfield, Leicester, one of only four highly specialised centres in the UK providing ECMO for adults.

“Currently there are not enough patients in Wales requiring ECMO per year to make a centre in Wales practicable.”

If you would like to donate to the Lucy Ellis Foundation please go to https://lucyellis.love/

Hi,

I am writing to you to ask for some support in anyway possible.

On the 15th of May we tragically lost Lucy, our 16 year old identical twin to Sepsis.

In hours…

It all really went downhill in the space of 6 hours when it went from just simple cold/flu symptoms to what we now know was Sepsis.

After a weekend of cold/flu like symptoms (BP, Pulse and Temp did not show any serious signs as we had all the machines to test these things over the weekend) a doctor’s visit on Monday morning referred her to the hospital immediately as there was no observations pointing to any prognosis.

MAU treated her chest pain and breathing difficulties for 12 hours, even though she said she could not breath and needed oxygen her O2 was 100% (7 bags of IV fluid and multiple antibiotics) and had many tests including multiple Blood tests and X Rays but at 4am motling started to appear in her legs. It was at this point she went for an emergency CT scan or her chest that showed sign of fluid around the heart (Pericardial effusion).

It was at this time she was rushed to Main Theatre for a fluid drain on fluid surrounding her heart. After the drain we had a brief moment where she was without pain and stable. Within an hour she had to be put into an induced coma as there was still no immediate signs of improvement and something else was wrong. There an internal exploratory examination on her body to try and find the cause of the sepsis yet it also showed no signs of any why.

It was at this point the consultant in the ICU came in to the “family room”, sat on the floor and said some very memorable words. She explained that they could not find the actual cause of the Lactic acid in her blood (Sepsis) and even though Lucy was on assisted breathing and controlled drugs during her induced coma there were no signs of improvement, which was not normal. She continued to explained that Lucy was the sickest person in the Hospital and probably the sickest she had seen for weeks. It was also at this momentous point she said “It’s highly likely that Lucy would Die”. Sophie threw her drink across the room, fainted and everyone in the room broke down (words can never ever explain what “Broke down” means here), indescribably.

2 hours later Lucy arrested and Cath and Neil (Mum and Dad) watched Lucy be brought back to life with manual CPR and then they left the ICU to do their thing. An hour later we were informed she had arrested again and was on an automated CPR belt (AutoPulse) and a team from Royal Brompton Hospital in London were called in via helicopter. 2 hour wait. We went see Lucy during this 2 hours and we could be never prepared for the site of Lucy on this AutoPulse machine, this can not be unseen and will stay with us for the rest of our lives.

The Royal Gwent hospital (Newport) ICU department did everything in their power (she was under 20 consultants care) to save our little girl’s life but unfortunately her very large physical reserve meant when that reserve and fight emptied things would go down hill so very fast. When the specialist doctors from Royal Brompton Hospital came with the specialist machine to bypass and filter her blood it was too late.

We have set up https://Lucyellis.love website to explain the whats, whys and explain how a charity called “The Lucy Ellis Foundation” will help with future examples of such an athlete losing her life so quick.

Lucy’s foundation has 3 main causes:

1. To raise funds for the training and supply of a specialist blood machine (ECMO) in Wales where we have NONE. This machine has proven to help save many lives in these types of cases. Please see website for more details.

Believe it or not this machine is manufactured in Swansea, Wales but there isn’t a single hospital in Wales that has one at hand or has a team to make this technology possible.

2. The foundation wants to raise awareness of the danger signs and symptoms leading up to the onset of sepsis to athletes, parents and others. The signs in athletic/healthy people can be very different to average or unwell people.

We want to make people aware and understand what sepsis is, why do we hear it everywhere now and put things in to perspective when It takes more than 44,000 lives a year, that’s more than prostate, bowel and breast cancer and AIDS combined. Almost 50% of people have never heard of Sepsis.

3. The foundation plans to help raise funds for underprivileged children that cannot afford to chase their dream of being an national or international athlete. This could be for equipment, travel costs, tuition fees etc. Lucy was an incredibly fit, dedicated and talented gymnast and had her heart set on the World’s/Olympics one day as a gymnast, we would like to help others have that same dream.

Lucy was a special girl that has touched many people’s lives in the short time of her life. Lucy had a conversation in Turin this year with her dad where she wanted to leave this life knowing she has made a difference and wanted to be down in writing for someone that made a difference. Little did she and the family know this difference would be in her death. We know that it would be nothing more than her wishes to make sure we can save other people’s lives and helping other children chase their dreams in her memory.

Anything you could do to give any type of support or help for her cause would be greatly appreciated.

Thank you for your time

You can donate here. https://lucyellis.love/

We have set up a Facebook group https://www.facebook.com/groups/1578452278920488/ for everyone to share their photos,vidoes and memories of Lucy.

We found it was very time consuming and difficult to save all the photos from the group message and then upload them to the website, so we have created the Facebook memories group which can allow us to directly allow you to contribute to the foundation page much easier.

If you would be so kind to repost/re-upload the photos,videos and even add some stories of your memories/moments of Lucy we would greatly appreciate it.

Sorry for the process of having to repost these but we underestimated the logistics of saving the photos from the Facebook group message, this process is easier for everyone to help the cause.

Lots of posotive ideas and directions have come through today, please keep sharing the foundation pages

#WATCHTHISSPACE #LUCYELLISLOVE

 

Miss Redfern – Head of Year 11

It has been my privilege to be Head of Year to Lucy and her year group for 5 years. The staff at school have kindly shared some stories with me which I’d like to tell you to give you just a glimpse into Lucy’s school life.

Lucy and Sophie came to Bassaleg from just outside of catchment with a small cohort of friends from Glasllwch primary school. They were definitely something of a fascination to other pupils – some had never seen identical twins before and they fast became quite the celebrities. We absolutely could not tell them apart in those days.

On Leavers day in May, Mrs Kirkham told me how they laughed in form class as Adam told a story about his first day at Bassaleg after moving here from John Frost school – he met Lucy and got to know her a little that day but said he was very confused later when he met Sophie; she hadn’t had chance to mention her twin yet!

Lucy told everyone about the time Sophie was asked to attend maths intervention in Year 8. The idea was to boost her grades. In fairness Sophie’s grades quickly began to improve, so much so she was signed off from the classes………..Lucy finally let the cat out of the bag that day that she had been the one who attended the sessions in Sophie’s place!

Lucy loved full course RS and got on famously with Miss Jenkins; spending two years sat right next to her taking every opportunity to quiz her about the things they studied; Miss said she loved teaching Lucy because she was full of questions, she always wanted to understand more about why people did things, she didn’t want to just accept things or take them at face value, she wanted to really understand them. Miss Jenkins describes Lucy as mature and thoughtful, as lovely, caring, hardworking and always so very interested.

Everyone comments on how she was really focused. She pushed herself to do the very best she could – she really wanted to do well. In a recent conversation, her mum told me how hard she was working at home too – preparing herself for her exams. Lucy was dedicated.

Many staff and friends have talked of Lucy’s infectious smile and laugh – she was full of energy and joy. She could always make Sophie and their friends laugh but also had a great calming effect on them when needed.

Mrs Kirkham remembers being really touched when Lucy brought her a slice of cake that she’d baked at the weekend – she wondered how she’d found the time between her gymnastics and school commitments! It goes to show just how much Lucy lived life to the max – finding time for little gestures that meant so much to people.

In our leavers assembly I mentioned a little incident that happened in year 9 where a group of pupils were brought to me at lunchtime after playing on the field……. they were covered in flour!!!! We bundled them all into the library and made calls to all their parents to come collect them – there was no way they could go to lesson 5 in that state. They were all blaming each other and Lucy and Sophie were besides themselves, slightly hysterical in those early days, as I’m sure you can imagine! They could both be prone to a bit of high pitched explaining and they tried several times to talk over each other to get their point across! It was hopeless trying to get sense out of any of them, so we waited for mums and dads. When mum arrived I remember the two girls getting quite upset and loud again as they vehemently tried to seek mum’s understanding and make it clear that it definitely wasn’t their fault – mum took one look at them, raised a finger and an eyebrow and the effect was instant! …..Silence…. I knew from that point on that these two would turn out just great. Mum was so good with you Sophie, and you clearly loved and respected her….. and Cath, I was very impressed at how calmly you handled the girls. It seemed clear they’d just got caught up in it – and Lucy wrote me note to that affect saying “I NEVER, (capital never) …wanted to get involved, it was thrown on me………..but I admit I did throw one bit”

In the detention that followed the girls dutifully filled out a booklet about behaviour expectations and in answer to a question about what she thought about rules Lucy wrote…… “I think the pupils should be allowed to invent new school rules” – I really wish I’d explored what 13-year-old Lucy had had in mind.

Lucy wrote me letters from time to time explaining problems she was having with people or worries she had – it was clear every time that she tried her very best to keep calm and stay away from trouble. A few times she got pushed too far and lost her cool, but she always came out smiling, worked it out and moved on. Her record in school and in lessons is superb. She received many credits from teachers for outstanding participation, excellent contribution to our community, subject shout outs, outstanding progress and many more. In year 11 alone she has 645 positive points against a handful of minor consequences – what a quiet, understated, conscientious superstar.

Mrs Lloyd Hughes got notes from Lucy too – on her maths homework. Lucy was so dedicated that she’d do her past papers in the car on the way to her gymnastics training, 3, 4 sometimes 5 times a week over to Bristol. It was the only time she could find so she’d write little notes on the work apologising for the wobbly writing! She made Miss laugh and Miss loved the way Lucy always bounced into her lessons, always happy, always smiling. She seemed to love maths and along with English, welsh and RS short course had already secured her GCSE passes.

Mrs Sullivan taught Lucy Welsh bac and I get the impression she had her work cut out with Lucy, I don’t think she really liked Welsh Bac and could be quite the force to be reckoned with, stubbornly resistant to the subject perhaps! Miss describes Lucy as a lioness – what a great description of her – fiercely loyal to her friends, her family and especially to you, Sophie; but she always nurtured and showed her soft, caring, motherly side too. Miss saw that.

We know Lucy loved her gymnastics – and Mrs Sage told me a story I’d never heard before of how Lucy and Evie Jones were competing at the Welsh Schools Acro Championships in Cardiff. In the taxi on the way Lucy announced that she’d forgotten her music (this being an essential part of the routine!) Lucy called dad and told him she hadn’t even burnt it to a CD! Miss Sage was a nervous wreck as she imagined having to hum the theme whilst they performed. In the space of an hour or so, not only had dad made the CD, mum had driven to Cardiff to deliver it, and all in the nick of time. It was Evie’s first acro competition but the girls performed as if nothing had happened because Lucy had done such a great job of reassuring and guiding Evie. Lucy never doubted for one minute that her parents would make it.

Lucy was also an integral part of the gym and dance display – her incredible talent captivated the audience. In the last display her ‘top’ or partner came in to showcase the routine that had gained them their outstanding reputation. It was a real show stopper performance. Mrs Charles said she was 100% reliable for practice and never missed a session – what a role model – dedicated throughout. And she was generous in helping others – Lucy was a great help to Sophie with her gym coursework too – guiding her and supporting her throughout her routine. Apparently the staff weren’t needed, Lucy and Sophie had it all covered!

On another occasion whilst walking in Snowdonia one of the group got a bit distressed about the difficult, steep and unfamiliar surroundings. Lucy was the one who, with a smile on her face, was motivating the group to overcome the challenges – her flexibility and dexterity meant she bounded easily over the rough terrain.

Lucy so well rounded – she realised recently that she was struggling a little bit to manage all her work and commitments and to deal with all the stresses this year has brought. So she came to talk to us and get support and it was really helping her. You must all do the same; remember she’s a role model – so do as she did, take time out to talk to someone; don’t bottle things up or battle on alone.

Lucy was an absolute credit to Bassaleg school; a young woman who was everything you could hope for in a student. It’s a privilege for us to have played a part in her life and we are forever changed for the better for having known her.

Gym Stars on CBBC 12th June 2018

A gymnastics program on CBBC that Lucy appears in. Available to watch on catchup.

https://www.bbc.co.uk/iplayer/cbbc/episode/b0b6pjtz/gym-stars-series-1-7-a-star-is-born

First aired 12th June 2018. Thank you BBC for the thoughts.

15:38

15:50

19:50

Hello, i’m here to talk about my twin sister.

There is way too many stories and memories we shared to fit in one speech.

Let me start to explain why she was an amazing, inspiring young woman, an amazing gymnast and the best sister i could ever ask for.  Lucy was always there for me, even after an argument, she would always be my shoulder to cry on. She was always the bossy one, and i was the argumentative one we was just the same but different I would do anything to protect my twin.

Although we were so different, me and lucy were exactly the same in every single way. We would share each others clothes but she always used to say ‘ Ask me first’, but she would never let me wear her black ripped jeans.

Lucy was naughty at times one time  when lucy was in my dads office, throwing the remote in the air and catching it, when it suddenly landed onto his apple mac and smashed the screen. He wasn’t happy.

Here are some good stories and funny memories too to think and laugh about:
She was a very athletic girl she would go to gym every day then still go for a 5k fun after she was mad.
She would always love her dancing like one time my friend Oliver was over and lucy was down stairs with him and I went up stairs for something and I came back and both of them was just dancing to some strange music, lucy did love her dancing she would definately join in if she could twerk or move hips, thats Amirahs fault as in year 7 we used YouTube to learn how to twerk and that’s how she always did it.

Lucy was such a beautiful young lady, but as she was my identical twin i knew she beautiful in every way.

I’ll will always love my twin, we were born together and even though we’re not dying together i will carry my life on like she would want me too, i will do her proud.

Maybe i’ll have to revise for some exams, but it’s what she wanted.

She will always have a large space in my heart, it’s no longer lucy and sophie as two different people, its lucy and sophie as one, and it always will be from now on.

I love you twin twong, and i always will. Fly high my beautiful angel, i will do you proud.

Lucy

The strength and talent you possessed will always be admired, and you will be eternally loved.

Proud of your mind, intelligence and maturity. I will always strive to be the person you were and were working towards.

It is hard to find a purpose or reason in this.

But mine will be to always make you proud and to be someone as you once wished.

Your name will be written in history with the impact you have had in all of our hearts and what is to come.

I will always be reminded of your beauty, whether it is a pink flower blooming in the summer, a star in the night sky or your sisters smile.

The Kindness of your Grandmothers

The Hard work of your Father

The Laughs with your Sister

The Strength of your Mother

Are all reasons I’m proud to be your Big Brother.

I Love You Lucy, You Will Be Forever missed.
Oly xXx

On Thursday 7th June at 11am our beautiful Lucy took her last journey. The beautiful service will be held at St. Basils church Bassaleg and then she was laid to rest at Bassaleg cemetery, griffin lane.

The huge turnout just shows how much Lucy touighed so many people and they wanted to show there respects.

Thank you for the pink touch as well.  Very very special but sad day.

By all mean send me some photos we me to share with other on this webiste.

Thanks again for all you support.

Neil & Catherine

King Edmunds Gym club Balloon Release as a tribute to much loved Lucy Ellis.