Sophie’s New Braces

Finally have braces 😊 Look more like Lucy now more than ever and I love it 💖 My amazing twin and she will never be forgotten it’s 2 months ago today I lost my beautiful twin and I can’t believe it’s been that long.

I never thought I would last a week without my twin let alone 2 months. I miss you so much twin and I’m going to do you proud 💖 Now I’m going to look like you more and more everyday 😊 😂 💖

Corrie – Hard post but necessary – Sepsis

With the story line tonight that is currently on Corrie we appreciate and humbled by all the thoughts, prayers and well wishes.   As you can imagine it was very hard for us to know it was being aired tonight and tbh can not watch it yet.

We are thankful that sepsis awareness is being spread across all media including main stream television.

Lucys’ story of sepsis and her symptoms were the #SAMEBUTDIFFERENT please read more here

As a foundation we just want to raise peoples awareness of how sepsis could happen to anyone at anytime and people need to be more aware to the symptoms which can be VERY confusing.

Also want to say a big thanks to Chico ( for sharing our page and Lucy’s story through his Facebook feed and a live video. His positivity and energy would have made Lucy Smile on so many levels.

Thank you to Lisa Hardy for continuing the push to raise money through the “Lucy Ellis Raffle” she has organised, so many amazing prizes for the raffle gathered 🙌🏼🙌🏼🙌🏼

There are so many people wanting to fundraise for our Foundation and we are all are very humbled with the love and compassion.

To come:

We will be selling T-shirts and wrist bands on our website which will include a donation to the foundation.

Still waiting on our Charity Number 😉

Need to upload a lot more photos to the Gallery area.

Working on a press pack

Working on a Fundrasising pack (Balloons, forms, leaflets etc).

Have fundraising boxes, awaiting stickers for boxes and chains so people can not nick them 😉

Have many ideas lined up with fund raising including a Gentelmens night, Running Fundraising from the Gwent Hospital the exact distance of the nearest ECMO machine just to name a few.  All being lined up.  So much to do and little strength at times…

Keep sharing, reading and giving. Much Love..

Be positive, or as James says PMA 😉

#Doitforlucy and #LucyEllisLove

Media coverage…

Cousin Oly

Today has been a mixed up day. Getting up early for work semi normality spending time with friends to finally being with Sophie, Cath and Neil. Rollercoaster of emotions.

As every day ticks by, Lucy is in our thoughts and talking about the memories (many tears) and constantly trying to #DOITFORLUCY and just “be” and doing simple things is hard.

That is what its all about, whenever anything is hard, a struggle, a challenge do it for our beautiful Lucy, as she would of.

May I also have the time to say how incredibly strong and inspiring Cath, Neil and Sophie have been. Also how much of a help my nan, my father and family have been. Also especially James, he’s been incredible!

Lucy’s passing has been horrible for all of us to go through and thank you to everyone thats made it more managble, the donations and support has been amazing.

Lets please make sure it doesn’t stop and this is just the start.

The 3 goals of our foundation WILL BE achieved and all starts with you reading this.


Never a moment without you in my thoughts.

Hope we are doing you proud XXX


Ed Sheeran tonight – An excited Sophie

James’s friend Diffa gave Sophie his Ed Sheeran tickets for tonight’s performance. Thank you so much Diffa for making our little girly smile.


She is soo soooo excited to go and today had her nails done, brows done, fake tanned and new outfit. Got to look good for Ed 😉

Fingers cross Ed’s team can do something for her. Still hoping. Never know she may even get a selfie with him 😉 lol

Sophie off her own back did a handstand (didn’t have a clue tbh) for #nationalhandstandday and also hash-tagged it #doitfoucy again she was smiling. She did ask me to do a handstand, uhh no, can you imagine? All in all a good day so far.

Starting to collate all photos and videos today for a gallery type thing on the web site. Long arduous task tbh.

I’m sure there will be more on the Ed trip in tomorrows post 😉

Media today – gone viral Nationally

Today was a very busy day in the National media, only one of which (Local Link) asked us for any comments or review. Funny enough that was the only one that included our website link 🙁

We have postponed BBC and ITV interviews until next week as we are not strong or ready enough as yet.

We have been inundated with offers of fundrasing events in the name of Lucy Ellis Foundation and very humbled by everyone that wants to help. Much Love.

We’ve contacted Ed Sherans agent and has forwarded the request for back stage passes onto Eds manager. Fingers crossed.

We’ve contacted the ECMO manufacturer and yet to receive a response to meet up to find out more about costs and training needs.

We have been also contacted by an agent for a magazine article. Haven’t replied as yet as lots going on.

Sophie went to her school yesterday to meet her teachers, talk and gave out “Forget me not” bags of seeds, a temporary tattoo of her symbol and memory stone. She loved meeting her School teachers and tbh was the first time she has smiled going to school 😉 Thank you Bassaleg School for everything.

That just about sums up our day.

Much love

Neil, Cath and Sophie