Delivery of 60,000 brochures for delivery to households in Cardiff. Ordered ✔️ Due for delivery Tuesday (today) ✔️ realisation last Thursday after an email that it is four pallet loads, an oh Sh*t moment scramble to try and change the delivery address to the Cardiff delivery firm ✔️ Printers said no problem will do our best ✔️. 08:45 knock on the door (YESTERDAY Monday) and tap on the shoulder from sleep (from Cath) saying there are 4 pallets outside for you 😲 Recovery mindset kicks in .. DOHHHH.
Always take the philosophy of it's not what Sh*te you're in but how you recover that defines you.
Right lets do this.... I step out of bed straight into a pile of sh*te that our puppy has left behind, antiseptic wipes out and removing all the remnants of poo from between the many toes. Yeah, sounds bad and was a FFS moment.
Wow, this day is getting better by the second! I pull on shorts and yesterdays top and stumble down the stairs half asleep and greet the lorry driver. Goodness knows what he thought when I opened the door and said, OK let's do this and dump them on the road and I will sort.
For those that don't know Bassaleg Road (where we live) is probably one of the business roads in the morning, I know of.
BUT, we got this, we got this.
I go into the garage and grab a Stanley knife (there are other knife providers 😉 ) and venture up to the road.
An articulated lorry that every car is stopping to get around is getting ready to offload the pallets. I go into my recovery mode and start to cart these 60 odd boxes off the 4 pallets.
These boxes were over 15 kilo each and to say the least (I'm not the fittest lol) I was feeling "tired" after a pallet and half. Cath (my loving wife) called in friends (next door and Farmy friend) and between us, all managed to get the 60 odd boxes in our lounge in an hour or so.
1. It's not all about the shit you are in, its how you recover that defines you (no matter if your body is PANTING and aching) 😉
2. Appreciate any help when they sincerely just want to help and expect to give it back if they ever need it. Cath, Sophie, Kerri-Anne and Caron THANKYOU bigtime!
3. Don't trust logistics firms when they say delivery is Tuesday and they will do their best to change the address. Expect incompetence and plan (my Dooh moment).
4. Think back to your why!! my why is that I want to get Lucy's story out there to save lives to Cardiff households and that WHY helped me push myself yet again.
5. Be prepared to ache for a few days when you live by point 1.
Next problem is how to get these boxes to the Splott, Cardiff delivery firm!! but that's a problem that I can procrastinate on.
Not quite funny yet as the muscle pain still reminds me of the situation but I'm sure in days/weeks I will laugh about it. 😜
Maybe Lucy just wanted us to add a little loving touch by having each leaflet touched by us to share a little love/spirit from our house!
🏉🏴🏆Grand Slam Champions 2019 memrobilia! 🏆🏴🏆
You are bidding for a signed print of the 2019 Six Nations Wales Squad. 🏴
This is a closed auction - to bid you must message Lucy’s raffle page with your bid.
You can also message Cath Ellis, Neil Ellis, Sam Pardoe or Lisa Harvey with your bid.
Bidding starts now and ends at midnight tonight. The winner will be announced tomorrow.
All proceeds will be donated to The Lucy Ellis Foundation. 💖
Happy bidding! 😃 ... See MoreSee Less
I'm sorry but have to post as I'm passionate about this one on the night before our big battle... Thank you so much Aaron Wainwright (a Bassaleg boy with a big heart) and Caroline (PA to Welsh Team) Lets kick arse tomorrow! #muchoveFab 5 for Fab Friday! 💖
5, yes 5 copies of these amazing prints!!!
2019 Six Nations Wales Squad Signed prints! 🏴🏉❤️🖤 ... See MoreSee Less
#muchlove to Lisa and the many helpers and donors in helping our Beautiful girl's charity raffle. Please go over and like/follow the raffle page as there are many more prizes being posted tonight. FAB FRIDAY is happening! #special .. Thank you muchly xx
Sophie gave me the most amazing gift today, so thoughtful and kind 💖 it made me cry (lots) but they were happy tears because I am so proud of my little warrior princess 💖 even though she is hurting herself she has still thought of my pain as well. Over the last 10 months she has shown the most amazing amount of strength and love and to say I’m proud is an understatement 💖 love you Soph 💖💖💖💖💖xxxxxxxxx
Prizes and Tickets via Lisa please xx 🙏🙏❤️Check out these beautiful raffle tickets......Each individual ticket has a sticker of Lucy lovingly stuck on by Lucy’s dad, Neil Ellis. 💖 Tickets will be with your sellers within the next 24hrs so start making contact with them now! We really do have some amazing raffle prizes to be won with more to follow. #DoItForLucy 💖 #RaffleForLucy💖
All funds raised from the raffle will be donated to The Lucy Ellis Foundation. 💖
Tickets can be purchased from:
Sarah Æ Mason Morgans
Rachel Balsdon Guy
Ethan Ed Harvey
Sarah Addison ... See MoreSee Less
When you spend 3 hours, printing, perforating, cutting and sticking our beautiful Lucy’s face on the soon to be available raffle tickets and you SPOT a bloody spelling error!!! 🙄 So it’s official the first 500 raffle tickets are extra special 😜 #muchlove ... See MoreSee Less
I just had a Grief Attack (normal) and without going into details it resulted in a lot tears and howls. A lot of feelings of sadness built up into an emotional bubble that pops and eases with logic .... Good job I bought more tissues.. xx ... See MoreSee Less
Does anyone connect with the word HOWL (as it does with Cath and I), xx
It happens Sweetheart
Just let the tears flow
I know I do
Night night 💔
Grief is a strange thing Niel,it washes over you like a tsunami when you least expect it , sometimes you need that release of emotion just to be able to take another breath . I hope your ok , thinking of you all . Sending hugs xxx
I believe in howl Neil I still do it my self it just creeps up on you loves you xxx
Bless you I had a bad panic attacks last week Neil and had to ring for an ambulance it's just awful big hugs I feel it pain xxx
My eyes often, without a REAL trigger (there are many), just leak. I have conversations with people (last weeks meeting with Royal Gwent hospital) and just needed to wipe the liquid that was coming from my eyes. Crying with no emotions... Weird!
Our Chief Medical Officer, Dr. Simpson, is quoted in this NY Times article. He said, “people with cancer, heart failure, kidney disease, and lung disease need to be informed: ‘Sepsis is your No. 1 enemy.'"
Click below to read more.
Just to update you, we have received (last week) Lucys Post Mortem (PM) results (252 days since passing) and came back with cause of death "unacertained". For those not au fait with PM reports (i.e. most) to assess the cause of death as "unacertained" means they have no idea or to be politically correct there was no results pointing to anything other than an viral infection and no pathological evidence to prove the actual cause of death.
Initially we were devastated to not have a virus name that caused her original infection. Basically with no positive results (on the dozen or so of tested popular viruses) on the pathological findings (tests on Lucy 3 days after her passing) they can not name the virus that caused her death.
There was a clear clinical (those that tested Lucy over the 2 days) prognosis of SEPSIS and as such her death was coded correctly (ICD coding - icd.codes/icd10cm/A419) based on a true clinical representation of her pathway through MAU->Theatre->ICU.
We had a great meeting today with Royal Gwent Hospital Consultants, ICU nurses and Nursing leads which answered a lot of our questions of the path report.
Hats off, they were lovely and the actions out of the meeting were very encouraging to make a difference to systems and training based on Lucys pathway and left feeling emotionally drained yet great positivity that Lucys passing has made a huge difference to the many "system" and there are learnings to be made and positive initiatives afoot. We are still pushing for further Virus tests to try and move from "uncertained" to xxxxx virus but coding will always be SEPSIS (which was important to me for correct reporting and potential actions as a result).
A huge thank you to Royal Gwent Hospital staff for listening to Cath and I and taking onboard potential areas of improvements as a result of Lucys passing. One of which to call out was to use Lucys pathway (they way she presented at the hospital, her pathway and potential red flags of an elite athlete etc) a use case for the training of staff in hostpial pathways. Making a difference indeed.
We will keep you informed of the many identified improvements as a result of Lucys passing as they materialise.
Sounds like you’ve had a really hard and emotional couple of weeks, but glad that Lucy’s case is being used in a positive way, to help others.....much love to you all xx
Thoughts and prayers always xx
Your family is always in my thoughts xxxxx
Sending much love to you all 💕
Love to you all ❤️❤️❤️
Thinking of you all. 💖💖💖
So glad you came away with some positive thoughts. Much love to you all xxx 💞 xxx
Thinking of you all & sending our love 💕
When i met you at the extremely difficult time, I knew that you were all a very close loving family (which may I say quite refreshing) parts of our jobs on ICU are very difficult and alot of us required support after this really overwhelming saddening situation. I am certain that Lucy will live on forever within you all, such a beautiful girl too. You will get answers one day I hope as medical science continues to improve consistently. You have each other to help you through which some people are not fortunate to have sadly. Love to you all on your ongiing journey xxx
Sending much love to you all. 💖xx
I am writing this with tears running down my face just reading this. What you have and are still going through must be so so difficult. You are always in my thoughts 💖💞 Sending love to you all. Xxxxx
We have told staff that three people had sepsis, why can't professionals see it 😢
Hope they follow through with the changes, I'm still fighting to find out why things went so badly for my husband. All my thoughts are with you at such a sad time, keep the fighting. x
A courageous family. BLESS YOU ALL.
Thankyou for spending your valuable time on something so worthwhile. X
Tonight Sophie and I went to Bassaleg School gym and dance display. This is an annual event that Lucy loved to take part in.
This year is a bit different as the staff and pupils have dedicated the display to our beautiful Lucy, it was so wonderful to see so many young people performing in honour of her memory.
In the beginning I found it very difficult to attend gym displays and competitions but now it makes my heart burst with pride and makes me feel a warmth and happiness that there are so many caring, kind and lovely people that want to remember our beautiful Lucy. A big thank you to all staff and pupils at Bassaleg School for organising such a wonderful evening.
Together we will all help Lucy make a difference in this world. Love
I nearly died of sepsis in 2008.
I thought this test was already being used in hospitals in England.
I heard about this over 2 years ago, so it's not new.
so y is it going to take another 3 years?
This test will save so many lives & needs to be available alot sooner
Such a brilliant idea. Not sure why it will take 3 years to roll it out. It needs to be funded now and get it rolled out
Just watched this on the news , huge step forward to getting it quickly diagnosed , I too cannot believe it will take 3 years to get it into the public , let’s hope it’s swifter x