I don't normally like to post a no actual news post, yet...

To this day Lucy's ACTUAL cause of death is still not officially classified by the Coroner. Yes 247 days and not knowing what actually was the cause of Lucy’s infection.

Yes, to this day, we do not have a formal original infection that caused her death.

OK, we know she had sepsis (What our charity is focusing on right now with sharing signs) which is a reaction to an “infection” that caused "septic shock" or "severe sepsis", yet they have no idea yet of the root cause of the infection!!

On communicating with the coroner, they basically are saying, stand by and often normal in these situations??, yet it still feels very strange to us taking this long…..

#muchlove #answersplease
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Praying you get answers soon 😘

You need answers Catherine and I hope you get them very soon. Sending love to you all xxxxx



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6 days ago

Lucy Ellis Foundation

#muchloveThrough the help of sharing Dylan’s page another life has potentially been saved... This is why I do what I do .. All for others & all for our brave son Dylan who we horrifically lost to sepsis... to share his story to help others. I DON’T want others to feel this loss & pain. I WANT as many people as I can to know about sepsis & to have the knowledge. What are the three stages of sepsis? Sepsis affects the body in three distinct stages. Stage One An infection invades a specific part of the body - pneumonia affects the lungs, for example - triggering the immune system into action. The germs and toxins produced by the bacteria or virus leave the original site of infection and enter the bloodstream. This causes the inflammatory response known as SIRS (systemic inflammatory response syndrome). Stage Two Individual organs throughout the body become affected and begin to deteriorate. In severe cases, this can lead to organ failure. Stage Three More than one organ stops functioning, and the patient experiences cardio-circulatory failure that leads to a sudden drop in blood pressure. This is known more commonly as septic shock. What are the signs of sepsis you should never ignore? If you, a loved one, or in the case of medical professionals their patient, feels "severely sick", doesn't appear to be themselves and shows any of the following symptoms, sepsis should be suspected: weakness loss of appetite fever and chills thirst difficult or rapid breathing rapid heart rate low blood pressure low urine output If a person is suffering these symptoms and they are thought to have suffered an infection - pneumonia, abdominal infection, urinary infection, or a wound - sepsis is a likely cause. #dylansarmy ... See MoreSee Less

#muchloveImage attachmentImage attachment

Yet another TV recognition of Sepsis tonight and 🙏❤️ thank you BBC Casualty for raising awareness of SEPSIS on your show tonight! Making a difference, raise awareness and save lives! #doitforlucy ... See MoreSee Less

6 days ago

Lucy Ellis Foundation

BBC Wales News
🚨 "It feels like you're going to die" The sepsis symptoms you need to know.
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Sorry again for the radio silence, but it was been a "difficult" few weeks. I won't go into it in detail.

Just a quick message to wish you all a happy New Year and wish you all every happiness for the forthcoming year.

I will give you an update in the next week or so on forthcoming activities.

Thank you from the bottom of our hearts for every single loving message, virtual hug and thoughts, all your fundraising and offering of help.

We appreciate 2019 is still going to be a challenging yet knowing our extended family of helpers being there for us and making Lucys dream real, conforts us.

Here's to new memories and fighting for a new normal.

#muchlove and Happy New Year
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Comment on Facebook

Always thinking of you all. All my love xxxx

Been thinking of you a little more across Christmas and the girls birthdays too 😪 Sending lots of love and hope 2019 can bring some positive news with this campaign and some peace for you and your lovely family 💖


xxx💞xxx together stronger


Love 💕 hugs xxx

❤️❤️❤️ Always in my thoughts xx

Lots of love to you all xxx

Thinking of you always and sending love 💕💕💕

Thinking of you all with love . 💖💖💖 xxxxx

A new normal 😘


Sending my love xx❤️

Much love to you all. Look forward to supporting LEF in 2019. 💖

Big cwtches xxx



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3 weeks ago

Lucy Ellis Foundation

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Please accept our apologies for being what some would say a Grinch this time of year.

Every advert, every song on the radio brings back memories and makes us "Sad"

Please accept that we, at this time, can not respond quickly to your messages and at times come across as not appreciative of your fundraising, it's the opposite. Believe me/us it can not be further from the truth.

Every advert, every corporate festive email, every "social" well wishing at this time (whilst understanding they need to exist) still makes us feel "sad".

Just a couple of examples:
Dunelm - all getting together to dress the tree.
Range - Get everything you want this Christmas
Song - All i want for Christmas is you

We do not want to put a downer on Xmas but don't be offended when we are distant at this time. I often define things in what I call bubbles. The 1st bubble is ME, the 2nd bubble is Cath and Sophie, the 3rd is family, 4th is friends and the 5th is everyone else. We are still concentrating (at this time) in order and struggle to get to 3 and concentrating on 4 and 5 is way off xx

The New Year brings new hope and much strength with all the help our LEF friends and family.

I/we truly wish you a merry Christmas and a happy new year (and that's not just words).

Neil, Cath and family. xxx
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Comment on Facebook

Always in our thoughts and hearts, no need for apologies hold each other close and try to stay strong Sending lots of love xxx

Totally understandable Neil . It's so hard when everything around you goes on as normal ,when all you want is for the world to stop . Every One understands,so no need for apologies . Your all in our thoughts . Love to you;Cath and Sophie xxxxxxx

You got no need to explain Neil we all here when ever you or Cath x Sophie need anything it is very hard for anyone to tell you all to be strong as we can't but we can help in any way we can always here for you all love you xxx

You deal with it how you need to Neil cannot imagine wot you all goin through xx

Been talking to Jess about how hard it must be for you all-we cannot begin to imagine. Sending much love to you all at this difficult time of year and always 💖xxx

Never far from my thoughts 🙏 So difficult for you all 😢 especially at this time of year...do what you need to 💜 Everyone else can wait x

I cannot imagine what you are going through 💔 We are all there for you when you need us. Thinking of you all so much, and sending love and hugs 💕💕💕

Thinking of you all. Xx

I cannot imagine how hard it is for you all 💔💔💔

Thinking of you all xx

You're in our thoughts daily xx

Can't even imagine the pain.💔💔💔sending tons of love xxx

It must be so hard especially this time of year ❤❤❤

Sending you all much love. 💖💖💖


Biggest hugs x

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1 month ago

Vicki Anne Cottrell

She done it for Lucy 💖 #doitforlucy ... See MoreSee Less

She done it for Lucy 💖 #doitforlucy


Comment on Facebook

That’s so amazing 💗💗

Awesome xx

Aww bless her that is amazing xXx 😊

Amazing, well done 💕💕

1 month ago

Lucy Ellis Foundation

#muchlove xxx

Zoe Trigwell Makeup
Lucy Ellis Foundation Raffle! Join us to find out the winners live!
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Comment on Facebook

Wonderful 💖Thank you Zoe xxx

1 month ago

Lucy Ellis Foundation


Bellas Fundraiser for the Lucy Ellis Foundation
She’s feeling like a celebrity this morning! I don’t think she realised how special what she’s doing is until today 💖💕#doitforlucy
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An #ECMO success story 🙏❤️ (one of many many I am reading daily) - www.youtube.com/watch?v=rJBz_nrJHtA

#muchloveTricia Steed’s heart stopped three times as she neared the end of her pregnancy for twins Alva and Della. The Binghamton resident and cardiac nurse credits t...
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Video image


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2 months ago

Lucy Ellis Foundation

ECMO PRN 🙏❤️❤️🙏 ... See MoreSee Less

ECMO PRN 🙏❤️❤️🙏
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