Lucy Ellis Foundation shared a post.
5 days ago
#Muchlove Damian and fam, fighting with a paralleled passion from the opposite side of the world. xx ... See MoreSee Less
#Muchlove and appreciation gym family! xx ... See MoreSee Less
Turin 5th July 2017 where she said those memorable words! #muchlove ... See MoreSee Less
Look at that smile & love for animals... SEPSIS takes anyone at anytime! #muchlove ... See MoreSee Less
my dad died of sepsis ,he was 81 ,we did a fundraising event today for the uk sepsis trust in his memory.
So cruel 😔
3 weeks ago
#muchlove #doitforlucyRaffle tickets are now on sale for £1 a strip for the Lucy Ellis Foundation raffle💙 The prizes will be drawn on Thursday at our summer show👯♀️ Please comment below or private message us to buy tickets, or alternatively they will be available to buy on the night😄Xx ... See MoreSee Less
I work in pentwyn, I will see if something can be put in our weekly newsletter this week to encourage our staff to take part x
What an absolutely fab routine girls, well done!! Brought goose bumps and tears. Miss you all dearly. xx. #muchlove ... See MoreSee Less
The Scottish government has made a real difference by sharing signs of SEPSIS to the public that actually makes a difference by not boiling the ocean and actually reaching out to the public to just ask the question "Could it be SEPSIS?"
The Welsh government have openly said they are concentrating on educating the medical profession (yeah this is really important). Yet they still leave mourning families to raise monies and share their personal experiences of SEPSIS to get the message out to real people (like us) and to be honest that make us feel like we are just another statistic and alone.
In Lucy's case Obs were temp 38.3c (Saturday), oximeter reading of 95% and 117/70 and 80 PR, breathing rate 15. The key (on reflection) for us was she was finding it difficult to walk down the stairs (weakness) on Sunday night (urine output was normal) and the visit to the doctor in the following morning (took 5 hours for an appointment!) started our tragic ending story. Her real deterioration was on that Monday where chest pain was unexplained and the urine output became 0 (after 7 ltrs of IV Salines), OBS still "normal". Being an elite athlete skewed the presentation here and her pathway was not red flagged enough! Tuesday 5am showed extremity shutdown by mottling in her legs. From here everyone was concerned 200% the rest is history (and on the website)!!
Lucy had VIRAL SEPSIS. Professional research has no exact figures on %'s (viral v Bacterial) but it is very rare as most SEPSIS presentations are linked to Bacterial infections (Strep-B, pneumonia, weak immune system to name a few).
Still fighting the Pathology report (yes, we still do not have an actual death certificate) to actually find the actual viral infection that caused Lucy’s death. They only tested for 12 common virus's and that’s not good enough for a 16 year old that passed away so quick! There are online payed services for more than 2000 virus's yet they have not made any effort to classify her death from UNASCERTAINED to that bastard virus that took her from us (Yes her Spleen is still frozen for tests in the Heath or the path report says so).
Our daily life is often finding the strength to just exist at the moment but that WANT to make a difference boils within us (with Lucy in mind) and with Lucy’s strength we WILL make that difference to people like you that need to know the real truth about the signs of SEPSIS and what to do and when to get really concerned to ultimately save lives!
#muchlove ... See MoreSee Less
So sad. Sorry for your loss. Surely theres a simple test that could be done to just rule it put automatically, before it destroys anyone elses life. Glad your strong enough to share yoour story and raise awareness.
I feel your frustration and anger so vividly so many under funded conditions in this country that we have to fight for everything 😢
Big hugs all x❤
My husband nearly died with this in hospital for 3 mths he was so lucky
So so sorry for your loss.
Keep fighting to get the answers u deserve & unfortunately Wales lags behind England in health care. From a sepsis survivor things definately need to change & a quicker diagnosis needs to happen to save more lifes. Be proud of urselfs, u r doing an amazing job of raising awareness of sepsis & Chloe wud be so proud of u that thru ur heartache & pain good will come of it & Lucy wud not have died in vain x
Very sepsis aware but not enough people are. Saw the GP today with a suspect lesion on the leg just below an old cellulitis infection!
It is a shame it has not taught people to spell?
When my diabetic brother was in with suspected sepsis. That's what paramedic said I asked a Dr why his arms were red and swollen I was told water retension he died the next week of sepsis. So angry .
Thinking about you all. I hate sepsis 💔
No fundraising ask, no emotional post, just sometimes "KISS" is needed, we love you all so so very much! You are all so special to us by helping or simply just listening. It eases (in many ways) our pain and keeps Lucy's dream of making a difference real! x #muchlove ... See MoreSee Less
Lucys new wings will not only travel you across the world in style but the travelling experience will be first class, maybe not champagne, but lots of love, strength, ambition and enjoyment to each and everyone of you.
Enjoy the weekend my friends and most importantly have fun!.
Miss you all
Neil, Cath & Sophie sending #muchlove ... See MoreSee Less
Love, love, love this. 💖✈️💖
How wonderful ❣️❣️❣️❣️