I don't normally like to post a no actual news post, yet...
To this day Lucy's ACTUAL cause of death is still not officially classified by the Coroner. Yes 247 days and not knowing what actually was the cause of Lucy’s infection.
Yes, to this day, we do not have a formal original infection that caused her death.
OK, we know she had sepsis (What our charity is focusing on right now with sharing signs) which is a reaction to an “infection” that caused "septic shock" or "severe sepsis", yet they have no idea yet of the root cause of the infection!!
On communicating with the coroner, they basically are saying, stand by and often normal in these situations??, yet it still feels very strange to us taking this long…..
8 months ago today I lost my beautiful twin💗I miss you so much twin you mean the world to me 👼🏻everything I’ve done since you passed is all for you😚I push myself because of you I’m here because of you twinny 💗I love you twin twong💗you’ll always be my beautiful angel 👼🏻🕊💗
#muchloveThrough the help of sharing Dylan’s page another life has potentially been saved...
This is why I do what I do ..
All for others & all for our brave son Dylan who we horrifically lost to sepsis... to share his story to help others. I DON’T want others to feel this loss & pain.
I WANT as many people as I can to know about sepsis & to have the knowledge.
What are the three stages of sepsis?
Sepsis affects the body in three distinct stages.
An infection invades a specific part of the body - pneumonia affects the lungs, for example - triggering the immune system into action.
The germs and toxins produced by the bacteria or virus leave the original site of infection and enter the bloodstream.
This causes the inflammatory response known as SIRS (systemic inflammatory response syndrome).
Individual organs throughout the body become affected and begin to deteriorate.
In severe cases, this can lead to organ failure.
More than one organ stops functioning, and the patient experiences cardio-circulatory failure that leads to a sudden drop in blood pressure.
This is known more commonly as septic shock.
What are the signs of sepsis you should never ignore?
If you, a loved one, or in the case of medical professionals their patient, feels "severely sick", doesn't appear to be themselves and shows any of the following symptoms, sepsis should be suspected:
loss of appetite
fever and chills
difficult or rapid breathing
rapid heart rate
low blood pressure
low urine output
If a person is suffering these symptoms and they are thought to have suffered an infection - pneumonia, abdominal infection, urinary infection, or a wound - sepsis is a likely cause.
#dylansarmy ... See MoreSee Less
Yet another TV recognition of Sepsis tonight and 🙏❤️ thank you BBC Casualty for raising awareness of SEPSIS on your show tonight! Making a difference, raise awareness and save lives! #doitforlucy ... See MoreSee Less
Always thinking of you all. All my love xxxx
Been thinking of you a little more across Christmas and the girls birthdays too 😪 Sending lots of love and hope 2019 can bring some positive news with this campaign and some peace for you and your lovely family 💖
xxx💞xxx together stronger
Love 💕 hugs xxx
❤️❤️❤️ Always in my thoughts xx
Lots of love to you all xxx
Thinking of you always and sending love 💕💕💕
Thinking of you all with love . 💖💖💖 xxxxx
A new normal 😘
Sending my love xx❤️
Much love to you all. Look forward to supporting LEF in 2019. 💖
My dear friend had use of ECMO prior to double lung transplant. Astounding machines and hope they can be implemented to help with SEPSIS situations too. In my family and friends we have had 4 nasty brushes with SEPSIS (including me) but 1 is incredibly lucky to be alive after multiple organ failure which nearly killed him.
100% proof that sharing raises awareness and can save lives........
One of our Lucy Ellis Foundation afternoon tea guests was admitted to hospital this week with Sepsis. The young lady felt very poorly earlier in the week and self diagnosed her symptoms purely from the Lucy Ellis Foundation Sepsis awareness posts. The only reason she knew about the signs & symptoms were through The Lucy Ellis Foundation.
Upon admission to hospital, the consultant confirmed she was indeed suffering from Sepsis and treatment began immediately.
Without the Ellis family’s continued campaigning to raise awareness the young lady may not have self diagnosed her symptoms. Much love to Neil, Cath & Sophie for their continued efforts to raise awareness.
If you haven’t done so already, please like/follow/share the Lucy Ellis Foundation Facebook page to help us continue to raise awareness of the signs & symptoms of Sepsis.
The young lady is still in hospital but treatment is working and she is heading in the right direction - she hopes to be home for Christmas. 🎄
#DoitforLucy 💖 #Justask #CoulditbeSepsis #Sharetoraiseawareness
I am not sure what is happening with your efforts to have ECMO machines put into hospitals. My friend's sister was admitted to the Royal Gwent hospital with Sepsis. They brought an ECMO machine from St Thomas' in London and they have now transferred her back to St Thomas'. think this is more evidence that we need this machine in Wales. My friend would like to help to raise money to fulfill this and so would I. When u feel.able will you let us know what we can do to help. In the meantime I hope you have as good a Christmas as possible in the circumstances.
Please accept our apologies for being what some would say a Grinch this time of year.
Every advert, every song on the radio brings back memories and makes us "Sad"
Please accept that we, at this time, can not respond quickly to your messages and at times come across as not appreciative of your fundraising, it's the opposite. Believe me/us it can not be further from the truth.
Every advert, every corporate festive email, every "social" well wishing at this time (whilst understanding they need to exist) still makes us feel "sad".
Just a couple of examples: Dunelm - all getting together to dress the tree. Range - Get everything you want this Christmas Song - All i want for Christmas is you
We do not want to put a downer on Xmas but don't be offended when we are distant at this time. I often define things in what I call bubbles. The 1st bubble is ME, the 2nd bubble is Cath and Sophie, the 3rd is family, 4th is friends and the 5th is everyone else. We are still concentrating (at this time) in order and struggle to get to 3 and concentrating on 4 and 5 is way off xx
The New Year brings new hope and much strength with all the help our LEF friends and family.
I/we truly wish you a merry Christmas and a happy new year (and that's not just words).
Always in our thoughts and hearts, no need for apologies hold each other close and try to stay strong
Sending lots of love xxx
Totally understandable Neil . It's so hard when everything around you goes on as normal ,when all you want is for the world to stop .
Every One understands,so no need for apologies .
Your all in our thoughts .
Love to you;Cath and Sophie xxxxxxx
You got no need to explain Neil we all here when ever you or Cath x Sophie need anything it is very hard for anyone to tell you all to be strong as we can't but we can help in any way we can always here for you all love you xxx
You deal with it how you need to Neil cannot imagine wot you all goin through xx
Been talking to Jess about how hard it must be for you all-we cannot begin to imagine. Sending much love to you all at this difficult time of year and always 💖xxx
Never far from my thoughts 🙏 So difficult for you all 😢 especially at this time of year...do what you need to 💜 Everyone else can wait x
I cannot imagine what you are going through 💔 We are all there for you when you need us. Thinking of you all so much, and sending love and hugs 💕💕💕
Thinking of you all. Xx
I cannot imagine how hard it is for you all 💔💔💔
Thinking of you all xx
You're in our thoughts daily xx
Can't even imagine the pain.💔💔💔sending tons of love xxx
It must be so hard especially this time of year ❤❤❤
Lucy Ellis Memorial Award This award is dedicated to the late Lucy Ellis, a former gymnast at King Eds that sadly passed away in 2018 to SEPSIS. This award is presented to an individual(s) who is/are truly dedicated to the sport of Gymnastics. Lucy’s life was dedicated to the sport of Gymnast...
#muchloveTricia Steed’s heart stopped three times as she neared the end of her pregnancy for twins Alva and Della. The Binghamton resident and cardiac nurse credits t... ... See MoreSee Less
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