PLEASE READ: If there are any outstanding LEF fundraising monies to come in (or fundraising before next Tuesday 27th Nov) please consider doubling your donations/efforts by using the following PayPal donation link to Lucy's charity NEXT Tuesday (27th Nov) Yes only that day they are doubling donations!!
Make a donation using PayPal on PayPal UK’s fundraising page (www.paypal.com/gb/fundraiser/hub) or the PayPal App between 00:01 and 23:59 GMT on Tuesday 27 November 2018 (Giving Tuesday) and PayPal will match the full amount of the donation to benefit your chosen charity ("Offer"). The Offer is limited up to a maximum of £50,000 GBP total matching donations on the day, up to £5,000 GBP per benefitting charity and up to £1,000 GBP from a single donor.
In order for your donation to be matched, you must: a) have a valid UK PayPal Account in good standing; b) complete a donation via the stated website or the PayPal app, using your PayPal Account on Tuesday 27 November 2018; c) have your donation be within the first £50,000 GBP of donations received on that day; d) not have made donations in excess of £1,000 GBP towards the offer. Eligible donations do not include donations made using PayPal on websites or platforms other than the fundraising page noted above. Gift Aid claims will not be matched.
Reading T&C's important bit is donations less than £1k from any one individual. xxx ❤️❤️🙏❤️❤️🙏
Some people may not know that you can help LEF without paying anything more than you normally would on Amazon purchases. This video explains how the LEF could benefit with every purchase you make on Amazon. With Xmas coming up and shopping with smile.amazon.co.uk and not www.amazon.co.uk could make a difference. SIMPLE. #doitforlucy
The South Wales Argus Health & Care Awards 2018 evening raised over £600 for Lucy's charity. Thank you to each and every one of you that took their time to read Lucy's story, understand the layman signs of sepsis and ultimately donate to make her dream real to make a difference and ultimately save lives.
Has been a rough week tbh and I'm sure every future family orientated event will be.
Have been spending my time tonight to personally thanking those who said yeah to being contacted. (GDPR - sigh... in these circumstances and sorry for those that would have appreciated a personal letter and merch from us as I want to personally thank a lot more...).
Also, a happy pic of our new puppy Oscar (11 weeks) as all social media readers loves happy animal posts.
Are you and your loved ones aware of the symptoms of sepsis? Sepsis is a medical emergency and must be treated immediately - if you see 2 or more symptoms, act immediately. #stopsepsis #savelives #WorldSepsisDay ... See MoreSee Less
There are some nutters out there on ebay. I had one a couple of weeks ago lied through her teeth about the items being damaged but wanted to keep them for free and when ebay asked them to send them back after giving her a full refund, she kept them anyway and sent me a dirty nappy in the post in the prepaid postage. What kind of person does that really? Why would someone even go to the trouble of requesting a refund on something that's for a good cause? Beggar belief 😲xx
Really 😡😡 that’s all she got to moan about STUPID woman 😡
People are crazy. I sold a very expensive baby snow suit describes as white for a few quid, she asked for a refund as she thought it was “off white” it was a pristine suit worth £60 odd quid she had for £6. It cost her more to post back 🙈
Just dropped all items in our online shop to cost price. The shop is not about raising money but more importantly spreading awareness of Sepsis with Lucy's story. Also, a few items I have now sourced from China (Alibaba.com) 😉 All tiny monies goes towards our fund to make a difference. shop.lucyellis.love/collections/all
If anyone that have purchased already and would like a discount code for future purchases just PM me 😉 xx ... See MoreSee Less
Im back in hospital again with sepsis for the 3rd time with it. Such a horrible thing to have but then I think of you and your family and all the pain and suffering you are going through by losing your beautiful little girl xxx
Fundamentally ECMO is a life support machine that is called on when people are dying and specialist staff are in need of more time to fix the problem. In severe Sepsis cases it is often in the presence of extremity shutdown, arms/legs mottling and dying in front of your eyes (thats why you see lots on amputations as a consequence of Sepsis). It's ICUs last resort in having more time to find the actual infection/cause of the poisoning to treat the cause.
During the treatment of a possible Sepsis prognosis, hospitals (Sepsis 6 pathway - sepsistrust.org/wp-content/uploads/2018/06/ED-adult-NICE-Final-1107.pdf) take blood cultures (blood taken from the body to send to the blood testing lab) BUT it takes up to 3 days to find the specific cause of the lactic acid/poisoning to accurately treat with an appropriate Antibiotic to kill the cause, but when in sever sepsis (the next stage of body shutting down or causing inflammation to organs as a consequence of the poisoning) we simply do not have 3 days to wait.
ECMO machines (and specialist staff/team) are used to rest the lungs and heart when they are working overtime to try and keep the body alive from the infection. The body is struggling to do the right thing and in Sever Sepsis (Sepsis shock) cases it (the body) gets it all wrong and causes inflammation and damages to the organs it is fundamentally trying to save. Basically the bodies reactions tries to survive but gets it all wrong and damages more than it can save. The brain has mis-wired and in what it thinks is helping to fight the infection it is actually damaging the organs/body.
An ECMO machine/staffing takes blood from the arteries, removes the lactic acid (the poison that is flowing through the body), oxygenates the blood (relieves the pressure on lungs to pump oxygenated blood) and relieves the pressure on the heart to pump more blood to get clean oxygenated blood to the "whole" body, particularly extremities, which is a normal body reaction to shutdown things furthest from the heart first by trying to survive.
What is the difference from septicemia, blood poisoning and Sepsis?
Ok this is where terms like sepsis, blood poisoning and Septicemia gets very confused and cross used.
Septicemia (blood poisoning) is a bacterial infection that spreads into the bloodstream. Sepsis is the body's response to that infection, during which the immune system will trigger extreme and potentially dangerous, whole-body inflammation. Sever Sepsis is where the imune system is killing the organs (for want of a better term) and it is classed as life threatening.
Why is SEPSIS only now being heard of?
Now this is the controversial bit.
There is a thing called ICD coding. It's a code that is allocated to the cause of death. It was very easy to classify a sudden heart or kidney failure (for example) as a cause of death when it was actually sepsis as the infection caused the death. Fundamentally organ failure WITH a bacterial infection should be classified as SEPSIS. In the UK we are lucky that we have implemented correct patient pathways and now are are reporting effectively.
Why was it important to Lucy? On that Tuesday when lucy arrested (heart stopped) there was still confusion on WHY? She had an internal inspection on her bowels (apparently a common cause of sepsis) but every examination (20 consultants) showed no reason for the poisoning. To this day (I phoned the coroner last week and they still do not know why) we do not know what infection caused the sepsis.
A local ECMO would have given our situation more time to find the cause of the infection and obviously fix it.
A 3 hour wait for such a machine (to extend the time to find the cause) was too long and Lucy passed away.
A local ECMO machine/facility would have given the surgical team more time to find the CAUSE of the infection and corrected her bodies responce of septic poisoning.
What are we fighting for? An ECMO facility within an hour of every patient in the UK. Simple. If not Wales then definitely the South West of UK! (Drawing circles around every town that does not have such a facility within an hour and raising awareness) If the Welsh government do not agree (research doc underway) that it is not viable then I will be focusing on the UK parliament to make the change.
So the question on everyone lips is... how much is it?
The straight answer is I don’t know. Yes I know the machine costs around £40,000 but how many consultants and nurses are needed, I do not know.
I also haven’t found the strength (yet) to visit a facility to ask the question and it’s only been 5 months since we lost Lucy. BUT I will get this information as I say when I build the strength to take it to the next level.
When I read this, I realise how lucky I am to be alive. I am still having scans to try to find the source of my infection. Why my treatment worked and it did not for beautiful 16 year old Lucy I cannot comprehend. In your grieve you are doing amazing work to raise awareness of Sepsis and to put this ECMO facility into more hospitals. I hope that knowing that you will save other people's lives will help you in the loss of Lucy xx
Ethan Gunn interesting read on what the machine does Blake was going to be put on
Will get Charley Johnson to sort out donation for me xx
We came so very close to losing our extremely fit 16 year old son to this cruel, cruel condition in May , after 3 days of us thinking he had flu. we were told to prepare for the worst ....After major surgery and weeks in intensive care we were lucky , if you can call it that. I cannot begin to imagine what you have all been through my heart goes out to you, What your doing is amazing making so many people aware of this horrible cruel illness .I thank you . we had no idea about the severity of sepsis before our nightmare and I'm sure a lot of people are the same . Xx
I lost my mother to sepsis fifteen years ago, eleven days after she had an operation. It was a terrible way to end the life of a beautiful woman. It seems that not much has changed.
It’s only a couple of months since my Husbands Brother died from this . It’s heartbreaking for his family .I feel so much for Your loss . So young .
It was only a couple of months ago our friends son died from this so sad
It seems very common now yet government slow to provide machines and to train staff to operate them. Bless you for thinking of others in your time of loss
My husband died
Thank you for moving forward with this appeal at what is such a difficult time for you. As a retired ECP I'm very aware of the damage caused by the under recognition of Sepsis. I was however unaware of this piece of kit as i worked in a non hospital environment. I have been enlightened and agree all hospitals should have access to this facility. X
Of sepsis twenty seven years ago diagnosed to late to help him
You need to put a link on here so that people can donate to your cause.
My father died of sepsis after a quadruple bypass heart operation back in 1998
Health minister in assembly Vaughan getting email contact firstname.lastname@example.org
I'm just lucky. Have just survived sepsis.
With the quick thinking of the medical staff at Prince Phillip Hospital in Llanelli.
Our son, age 22 was acutely critically ill with pneumonia and sepsis in 2016...he was transferred ON ECMO from ICU The Maelor, N Wales to Leicester...as you say..his body just needed more time..he survived..51 days 3 ICUs...lost part of his right lung, the cannula pierced his heart, so OH surgery in ICU..he made it as fundementally ECMO saved him...we were told he had the last available ECMO bed that day..(25 in the UK).
Im so very sorry your child didnt get this life support..
How can i help with your campaign? We already fund raised for ECMO, Glenfield and our local hospitals..but we can do more...x
I was lucky to survive sepsis last Christmas thanks to the quick thinking of the staff at the royal glam hospital South Wales
What can we do to help, so sorry for you loss
My husband had sepsis twice in a year
My mum died 25 years ago of sepsis - have always been so frustrated at how little can be done and how little was known about it. Well done on the campaign
So sorry for your tragic loss and huge respect for what you are doing in your lovely girl's memory - wishing you strength and success for your cause. I truly cannot afford to donate right now, but as soon as I can, I will. Meantime, I will share and keep you in my best wishes 🙏💜
Hello everyone, we’ve organised a charity quiz night to raise money for The Lucy Ellis Foundation. We will be at The Pod on Wednesday 7th November 2018 starting at 7pm! All money raised will go to The Lucy Ellis Foundation, we would love to see you there! 😊💗 Please share this post! Thankyou x
Thank you millions King Eds! A very special day for some very special people...
Everybody, please come and watch/support a sport which is truly entertaining.. xx
#doitforlucyDate for you dairy Lucy Ellis Memorial Gymfest King Ed's will be taking part more information to follow please support this event Dates 25.11.18 Time TBC Venue Sport Wales National Centre, Cardiff
Lucy Ellis Memorial GymFest
Earlier this year one of our Acrobatic Gymnasts Lucy Ellis sadly passed away after contracted Sepsis. Lucy loved our sport and especially Acro Gymnastics, she was an accomplished member of the Welsh Gymnastics Acro Squad, the Welsh Community and also King Edmunds Gymnastics Club.
Lucy’s family started the Lucy Ellis Foundation with 3 main aims: Raise awareness of Sepsis Funding Wales’ first ECMO facility Provide Athletic Scholarship
Welsh Gymnastics would really like to show our support for this fabulous Foundation. We will be hosting a Lucy Ellis Memorial GymFest in November.
Lucy’s love of dance, her zest for life and her infectious personality made a GymFest the ideal way for the Welsh Gymnastics Community to show our support and help raise not only awareness but also some funds for the Foundation.
The GymFest will be an opportunity for clubs to showcase new Acro routines, new Gym Fusion routines or just simply show your support with a gymnastics/dance routine.
Routines can be no longer than 8 mins, clubs can enter as many routines as they want to.
Entry will be £5 per gymnast. There will be door charge for everyone of £3.
All proceeds raised will be donated to the Lucy Ellis Foundation
If you’d like further details please don not hesitate to contact email@example.com ... See MoreSee Less
Fellow Saint Simon Haslett is raising money in memory of his son Alex, who tragically died last November.
Alex - just 20 years old at the time - died suddenly from sepsis. Simon is raising money for the Lucy Ellis Foundation - who herself was just 16 years old when she also died from sepsis in May - to increase sepsis awareness and fund clinical training in sepsis survival.
Please - if you can - support this very worthy cause.